Though the Convention also subserved a good cause: At the end, organizer Monika Kirchberger could hand over a cheque of € 585 to Sylvia Krocker of the Regional Group Berlin/Brandenburg of the Federal Association for Neurofibromatosis*. The money goes into a camp for children and teenagers. In that camp, the fallen ill kids - who also suffer from the disease in their daily life, e.g. by being avoided or been looked at in a strange way - have got the possibility along with other affected kids to spend a great time.
But what is the connection between “The X-Files“ and the donation to the Federal Association for Neurofibromatosis?
For more than 15 years, leading actress Gillian Anderson is active in Neurofibromatosis associations in the US and Great Britain. Aged 3, her brother Aaron was diagnosed with Neurofibromatosis Type 1 - a neurologic disease which is - until today - incurable and can deface the appearance by inner and outer tumors.
At the moment, talks are undergoing to set up another convention of this kind in 2010.
The term “Neurofibromatosis" (NF) summarizes all genetic diseases which lead to different symptomes and mutations. An estitamed figure of 40,000 affected individuals live in Germany. The spread of neurofibromatosis seems to be independent from ethnical background, geography or gender-based factors.
Characteristics and course of both types vary from patient to patient. It is not possible yet to prognose the course of the disease of the individual patient.
Source: Federal Association for Neurofibromatosis (Bundesverband Neurofibromatose der Recklinghausen Gesellschaft e.V. )